Birds for Sofia
helping children with rare diseases to get access to life-saving treatments
Our Mission
We support children diagnosed with rare, inheritable diseases from Eastern Europe. We help families to get access to life-saving treatments. We fast-forward the fundraising process before it is too late.
Our Programs

  • Help Resettle Ukrainian Refugee Families in the USA
    Birds for Sofia brought 9 Ukrainian families to the USA as a part of the humanitarian effort to save the lives of children with SMA and other life-threatening conditions. BFS will assist the families with multiple aspects of their new life including housing, navigating the US healthcare system, and public services available for immigrants.
  • Medical Support For Children with Orphan Diseases from Ukraine
    During the war, children with rare diseases were hit the most. Some are cut off from qualified medical help with no access to medicine, medical equipment, and rehabilitation.

    Help us send the birds of hope to the most vulnerable families from Ukraine.
  • SMA Program
    Maksym Kyryk from Kyiv, Ukraine has SMA type 2 and requires Zolgensma medication which costs $1.8MM. The campaign is still missing $1MM. With your help, Maksym will have a life without a major disability. His family will be forever grateful for this gift of life for Maksym.
  • SMA Program
    Timofii Varenitsya from Ukraine has SMA type 1 urgently requires a LUISA lungs ventilator (NIVL). The device costs $11,240.
    Without this ventilator, Timofii's life is in danger.
Donate through Donor Advised Fund
For DAF donations please follow the link
BFS Impact Reports Q1-Q2, Q3, 2022
Why Birds for Sofia
We named our nonprofit after Sofia Darbinyan, a child with SMA whose life was saved. Sofia was one of the more fortunate children who did receive Zolgensma therapy. To raise the funds for her treatment, over fifteen hundred artists around the world drew birds in Sofia's honor. Bird by bird, they brought new awareness to her cause, and Sofia was saved.

Help us send the birds of hope to those who really need them. Join our fight for children with rare diseases today!

Sofia Darbinyan
painting by Jodi Sparber @jodisparber_art
Artists from left to right: Hannah Yata "Coquette", 2020; Paula Schramm "Dancers in White", 2020;
Alex Warnick "Red-faced Warbler and Mexican Blue Oak", 2019, a panel of multiple artists
More birds you can find on Instagram @birdsforsofia

We Helped
Who Supports Us
If you are interested in becoming a partner
or a sponsor, please feel free to contact us.
Subscribe to Our Newsletter
Once a month we will inform you about our fundraisers. Together we will save more lives
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Contact
Feel free to write to us.
We are really excited to meet new volunteers
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