29Mar2024
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Our Mission

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We help children with rare diseases from countries where insurance or governmental health assistance programs do not cover the cost of life-saving treatments

Our Mission

We support children diagnosed with rare and inheritable diseases from Eastern Europe. We help families to gain access to life-saving treatments and rehabilitation. We help to raise the much-needed funds for children who have a finite time when they are eligible for life-changing healthcare. We also support our children and their caregivers prior to and after gene therapy treatments.

Unbiased Inheritable Disease Program for Patients from Eastern Europe

We help children born with rare, less-known diseases. We help primarily with medical bills that are not covered by insurance.

Genetic Testing for Undiagnosed Patients from Eastern Europe

This program is designed to give access to full cycle service for symptomatic undiagnosed children from Eastern Europe.

SMA Program for Patients from Eastern Europe

Spinal muscular atrophy (SMA) is a fatal genetic disease. SMA affects approximately one in every ten thousand babies born each year.

Why We Are Birds for Sofia

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Our not-for-profit organization was named after Sofia Darbinyan. She is a child with Spinal Muscular Atrophy whose life was saved through generous donations. As a result, Sofia was one of the more fortunate children who was able to access Zolgensma gene therapy treatment. In an effort to raise the funds for her treatment, over fifteen hundred artists from around the world drew or painted birds in Sofia’s honor.

 

Each and every art piece our artist partners made created a new awareness of her specific cause. Due to their efforts and talents Sofia’s life was saved and forever changed. Please help us send additional birds of hope to those who really need them today. Please partner with us to continue changing the lives of children with rare diseases in Ukraine and throughout the world.

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Sofia Darbinyan

painting by Jodi Sparber @jodisparber_art
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