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Birds for Sofia Blog
We support children diagnosed with rare, inheritable diseases from different parts of the world. We help families to get access to life-saving treatments. We fast-forward the fundraising process before it is too late.
Sergey Privalov
We are happy to announce that Sergey Privalov's fundraiser is closed!
Just like the Privalov family, we still can't believe these words, we've been waiting for them for more than 2 years!
Our Foundation has already transferred 35,000 francs to the Zurich Children's Hospital in Switzerland, and another 19,000 we collected on Facebook will also be sent by our fiscal sponsor Advita USA. Now, Seryozha will finally get ready for his life-saving bone marrow transplantation.
When Seryozha's mother told him this, his first words were: "Mom, will I live like everyone else now? And we won't be asking for money anymore, right?" He was very, very happy, he was jumping for joy!
And we thank everyone who contributed to this joy from the bottom of our hearts.
Thank you anonymous donor for generously adding the missing amount. Thanks to all the volunteers who went this enduring road sharing about Seryozha's needs.
And surely, thank YOU, our dear friends here, who invested their time, money, skills, and talent to support Seryozha and make his dream come true.
Overall, this is a huge step towards the full recovery from #NEMO syndrome, and although Sergey has a long way to go, we just know he'll be fine. We wish you all the luck in the world at your surgery!
Just like the Privalov family, we still can't believe these words, we've been waiting for them for more than 2 years!
Our Foundation has already transferred 35,000 francs to the Zurich Children's Hospital in Switzerland, and another 19,000 we collected on Facebook will also be sent by our fiscal sponsor Advita USA. Now, Seryozha will finally get ready for his life-saving bone marrow transplantation.
When Seryozha's mother told him this, his first words were: "Mom, will I live like everyone else now? And we won't be asking for money anymore, right?" He was very, very happy, he was jumping for joy!
And we thank everyone who contributed to this joy from the bottom of our hearts.
Thank you anonymous donor for generously adding the missing amount. Thanks to all the volunteers who went this enduring road sharing about Seryozha's needs.
And surely, thank YOU, our dear friends here, who invested their time, money, skills, and talent to support Seryozha and make his dream come true.
Overall, this is a huge step towards the full recovery from #NEMO syndrome, and although Sergey has a long way to go, we just know he'll be fine. We wish you all the luck in the world at your surgery!
05/ 25/ 2022
Save Ukrainian Children
Humanitarian aid to the Ukrainian children with rare diseases
Our fruitful partnership with the Palm of Hope Foundation @palmofhope continues reaching more Ukrainian families with SMA kids in the war zone.
This month we managed to deliver portable ventilators to four kids with SMA type 1 in Khmelnytsky region. All 4 children had the early onset of SMA in the first weeks after birth, can't walk, eat and breathe unaided.
Thus, Bogdana Kivliuk @kivliukgalina, 6 years old, had tracheostomy performed at the age of 14 months. Since that time, she doesn't breathe on her own, is always connected to the ventilator, and receives nutrition through a nasogastric tube.
Arianna Zabarna @innazabarna, 3 years old, lost her ability to swallow and breathe even earlier when she was only 5 months. She received her first dose of Spinraza in 10 months, being already intubated.
Two other kids are currently receiving their long-awaited Risdiplam @rocheukraine @roche through a charity program. Before that, Anastasia Vidiuk @nataliavidyk, 9, spent nearly 2.5 years of her life in the intensive care unit and had a tracheostomy before she was 2. Zakhar Lopatinskiy @tany.kozyr, 4 years old, is also is a carrier of a gastrostomy, who can't sleep without non-invasive ventilation.
These families live in the constant fear of a sudden power outage and subsequent respiratory arrest, lack of medicines, and special nutrition for their kids. The new LUISA ventilator they received from us is a 3rd generation device for high flow oxygen therapy. It is battery-run, lightweight, and easy to use under any circumstances. It is life-saving, moreover, it is like a second birth to these children!
We express enormous gratitude to @palmofhope, personally Karina Youseff, and Boergel GmbH in Germany for organizing communication and logistics.
Thank you to everyone involved in creating this opportunity to save SMA children threatened by war. We look forward to its end, as these kids have many plans and hopes ahead, and we are here to support them.
This month we managed to deliver portable ventilators to four kids with SMA type 1 in Khmelnytsky region. All 4 children had the early onset of SMA in the first weeks after birth, can't walk, eat and breathe unaided.
Thus, Bogdana Kivliuk @kivliukgalina, 6 years old, had tracheostomy performed at the age of 14 months. Since that time, she doesn't breathe on her own, is always connected to the ventilator, and receives nutrition through a nasogastric tube.
Arianna Zabarna @innazabarna, 3 years old, lost her ability to swallow and breathe even earlier when she was only 5 months. She received her first dose of Spinraza in 10 months, being already intubated.
Two other kids are currently receiving their long-awaited Risdiplam @rocheukraine @roche through a charity program. Before that, Anastasia Vidiuk @nataliavidyk, 9, spent nearly 2.5 years of her life in the intensive care unit and had a tracheostomy before she was 2. Zakhar Lopatinskiy @tany.kozyr, 4 years old, is also is a carrier of a gastrostomy, who can't sleep without non-invasive ventilation.
These families live in the constant fear of a sudden power outage and subsequent respiratory arrest, lack of medicines, and special nutrition for their kids. The new LUISA ventilator they received from us is a 3rd generation device for high flow oxygen therapy. It is battery-run, lightweight, and easy to use under any circumstances. It is life-saving, moreover, it is like a second birth to these children!
We express enormous gratitude to @palmofhope, personally Karina Youseff, and Boergel GmbH in Germany for organizing communication and logistics.
Thank you to everyone involved in creating this opportunity to save SMA children threatened by war. We look forward to its end, as these kids have many plans and hopes ahead, and we are here to support them.
05/16/ 2022
Birds for Sofia Foundation
Our mission is to help children with rare diseases
Today, we would like to share exciting news about the annual auction organized by our partner, the "For others" nonprofit in Nashville, Tennessee.
For Others is a well-established, highly reputable organization working on the foster care program that improves the lives of many foster care kids in the US. This year their grand event involved such celebrity guests as Tyler Hubbard (Florida Georgia Line) @tylerhubbard, Ronnie Dunn (Brooks & Dunn) @ronniedunn, Carrie Underwood @carrieunderwood, Chris Tomlin @christomlin, Bear Rinehart @iamwilderwoods, Nate Bargatze @natebargatze, Ben Crane @bencranegolf, Ben Zobrist @benzobrist18, Marcus Allen, Mike Fisher, Darryl Strawberry, and many other sport and country music stars.
During the all-star auction, For Others partnered with the Birds for Sofia Foundation and raffled off one of the lots worth $400,000 in favor of the BFS Foundation.
The donor who received the lot wished for the money to go to the Humanitarian Aid Program helping children with rare diseases from Ukraine.
We sincerely thank the organizers of the event and our main donor for the opportunity to help more Ukrainian families with kids with rare diseases.
You can join our Foundation by donating any amount or applying for help directly on
For Others is a well-established, highly reputable organization working on the foster care program that improves the lives of many foster care kids in the US. This year their grand event involved such celebrity guests as Tyler Hubbard (Florida Georgia Line) @tylerhubbard, Ronnie Dunn (Brooks & Dunn) @ronniedunn, Carrie Underwood @carrieunderwood, Chris Tomlin @christomlin, Bear Rinehart @iamwilderwoods, Nate Bargatze @natebargatze, Ben Crane @bencranegolf, Ben Zobrist @benzobrist18, Marcus Allen, Mike Fisher, Darryl Strawberry, and many other sport and country music stars.
During the all-star auction, For Others partnered with the Birds for Sofia Foundation and raffled off one of the lots worth $400,000 in favor of the BFS Foundation.
The donor who received the lot wished for the money to go to the Humanitarian Aid Program helping children with rare diseases from Ukraine.
We sincerely thank the organizers of the event and our main donor for the opportunity to help more Ukrainian families with kids with rare diseases.
You can join our Foundation by donating any amount or applying for help directly on
11 de mayo 2022
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