Diagnosis: PID, NEMO syndrome
Age: 7 years old
The amount needs to be raised: $1.5 million
Type of collection: urgent

Sergey Privalov @seryozhahelp is one of a few children around the world who has ultra-rare NEMO syndrome. NEMO is a rare genetic disorder that impacts the immune system. Sergey's immune system cannot protect him from the environment: any virus or bacteria can kill him.

In order to survive, Sergey needs to receive antibodies in the form of immunoglobulin every month. Immunoglobulin helps his body fight infections. Sergey has been dependent on it since a very young age.

Recently, due to the Covid-19 pandemic complications, the pharmaceutical companies stopped importing immunoglobulin to Russia. Without it, Sergey's life is in grave danger.

The only way to stop the progression of NEMO syndrome is to transplant bone marrow from a 100% matching donor. This way Sergey's body will "learn" how to make his own healthy cells of the immune system.

The doctors from the Cincinnati Children's Hospital have a successful record of treating patients with NEMO in the past. The hospital invited Sergey for treatment but the price tag for his surgery, hospitalization, and rehabilitation is enormous.

It costs $1,554,888.

Sergey's family needs to raise this amount as soon as possible. The immunoglobulin supply that is currently in the family's possession will run out in about a month or two.

Help us save Sergey!

The estimated cost of treatment (Syndrome NEMO)
at the Cincinnati Children's Hospital (Ohio)