Html code will be here
We help children with rare diseases from countries
where insurance or governmental health
assistance programs do not cover the cost of
life-saving treatments.
where insurance or governmental health
assistance programs do not cover the cost of
life-saving treatments.
Our Programs
SMA Program for Patients from Eastern Europe
Spinal muscular atrophy (SMA) is a fatal genetic disease. SMA affects approximately one in every ten thousand babies born each year. If untreated, most of them do not live past two years of age.
SMA Program no longer takes patients for commercial purchases of Zolgensma medication.
This program is designed for children with SMA from Eastern Europe and will cover medical equipment and rehabilitation courses. Please contact us for the full list of things we cover.
To be eligible to receive help from BFS the patient needs to prove that other routes to receive help were exhausted and there is no possibility of insurance coverage.
SMA Program no longer takes patients for commercial purchases of Zolgensma medication.
This program is designed for children with SMA from Eastern Europe and will cover medical equipment and rehabilitation courses. Please contact us for the full list of things we cover.
To be eligible to receive help from BFS the patient needs to prove that other routes to receive help were exhausted and there is no possibility of insurance coverage.
Unbiased Inheritable Disease Program for Patients from Eastern Europe
We help children born with rare, less-known diseases. We help primarily with medical bills that are not covered by insurance.
To apply to the Unbiased Inheritable Disease Program the child requires to have a diagnosis. We help with treatments approved by the Food and Drugs Administration (FDA) or equivalent regulatory organizations in other countries.
To apply to the Unbiased Inheritable Disease Program the child requires to have a diagnosis. We help with treatments approved by the Food and Drugs Administration (FDA) or equivalent regulatory organizations in other countries.
Individual Grants to Rare Disease Patients in Need from Ukraine
This program supports families with rare diseases from Ukraine. Today, we are focusing all our efforts on Ukrainian children who got caught in the devastation and horror of Vladimir Putin's war.
This program will help to purchase medications crucial for life, rehabilitation, and other medical needs when the invoice is provided.
Help Birds for Sofia to make a real difference for these children.
Let's stand together in kindness against the darkness and pain of war.
Let's send the Birds of Hope to those who need them most!
To apply to our program, families can fill out the form birdsforsofia.org/application
This program will help to purchase medications crucial for life, rehabilitation, and other medical needs when the invoice is provided.
Help Birds for Sofia to make a real difference for these children.
Let's stand together in kindness against the darkness and pain of war.
Let's send the Birds of Hope to those who need them most!
To apply to our program, families can fill out the form birdsforsofia.org/application
USA resettlement program for Ukrainian refugees and asulym seekers
BFS helps Ukrainian refugee families with children with rare diseases to resettle in the USA and get access to medical treatments and rehabilitation. This program is designed for the "Uniting for Ukraine" parolees only. We highly encourage families to find a sponsor before applying to this program.
Genetic Testing for Undiagnosed Patients from Eastern Europe
This program is designed to give access to full cycle service for symptomatic undiagnosed children from Eastern Europe. BFS covers initial consultation with a geneticist and prescribed genetic test as well as follow-up interpretation of the test.
In most cases the early diagnosis is a key for better life quality of rare disease patients.
In most cases the early diagnosis is a key for better life quality of rare disease patients.
