Spinal Muscular Atrophy (SMA) is a rare, inheritable, neurodegenerative disease,
one of the most common genetic causes of infant death.
Fifteen Ukrainian children suffer from SMA and need a lifetime-lasting dose of gene therapy Zolgensma.
Zolgensma by Novartis costs over $2M, it is the most expensive medicine to date.
The war in Ukraine has halted all fundraising efforts.
Help us save the lives of children from Ukraine!

For media inquiries or helping these children please contact us at birdsforsofia@gmail.com
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