Board members and Operational Team
Zina Lara
Founder and Board Member
Zina's journey in helping others started when she joined a gene therapy fundraiser for a Canavan disease patient a few years ago. Since that time, Zina was involved in many complicated cases of SMA patients helping to raise money on time including baby Sofia.
After Sofia's fundraiser, Zina created a nonprofit to help other babies like Sofia worldwide.
Zina resides in Austin, TX with her husband and four-year-old daughter.
Besides helping children, she likes to spend time traveling and eating delicious food at the local restaurants in the Austin area.
Nataliya Miller
Board Member
Nataliya's journey in serving children started when she was in her 20s helping children from an orphanage located in her hometown in Ukraine. When Nataliya moved to the United States she continued to help children.
One morning Nataliya learned about a little boy who suffered from a rare genetic disease, SMA Type 1. Medical genetic treatment can be extremely expensive and the family's efforts to raise money have been slow.
Nataliya immediately started looking for a way to help this baby and found out about BFS. Nataliya joined the team inspired by the BFS's mission.
Nataliya's favorite cartoon character, Ariel, said: "I don't see how a world that makes such wonderful things could be bad". As a society, we can inspire each other to find the means to help, open our hearts and be willing to provide whatever we generously can.
Dina Minibaeva
Board Member
Dina is a small business owner and a student majoring in molecular biology at SEAN University, NJ. Dina's journey in helping others started many years ago when she supported orphans with disabilities in her hometown.
One day her close friend called with terrifying news. He told over the phone: "Dina, the daughter of my childhood friend is dying". He was talking about six-month-old Sofia Darbinyan. Sofia needed a life-saving treatment that cost $2,125,000 for spinal muscular atrophy (SMA).
Dina helped to launch an original #birdsforsofia campaign on social media that became viral. Now Dina can't imagine her life without helping children.
Ilya Musaev
Board Member
llya Musayev is a father of a boy named Nathaniel born with a genetic disease that severely impacts his development and causes life debilitating conditions.
Being an engineer by trade and working for one of the most reputable company in the world, Ilya shifted his knowledge of engineering into developing novel genetic treatments.
Over the past 2 years, he has built a team of researchers and collaborators in the US, Europe, Israel, and China to develop the first custom genetic treatment known as Tynasen to help overcome terminal genetic diseases for 25 children worldwide.
Ilya is actively advocating for other parents in the same situation helping them to kickstart treatments for their children with proper scientific understanding, expedience, and affordability in mind.

Katya Kramer-Lapin
Ambassador
Charismatic concert pianist and recording artist Katya Kramer-Lapin enjoys multiple careers as a professional classical musician, philanthropist, educator, and mother of four children. Katya's life credo is: "A person's a person no matter how small" by Dr. Seuss. Her passion is to help children worldwide. Through her music, Katya believes to raise as much as possible money to benefit BFS's programs.
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