Our Children

Timofiy Varenitsya

The second child in a healthy family, Tymofii was developing normally in the first days, however, he sadly faced the early onset of SMA already in the third week after birth. The genetic testing soon confirmed the Type 1 diagnosis and tore the parents' hearts forever apart.

In these 2 years, the family had to learn to build their life into Tymofii's routines and devices. Tim is taking Risdiplam as a part of Genetec's Early Access International Program.
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